Clearing out old posts I started and didn’t manage to finish. I found this one I wrote about a year ago about J’s use of language, even though he is non-verbal. He has made a little progress with language use and we are so proud to see how hard he tries and what he has achieved since I wrote this post originally:
J is what would be termed non-verbal. He finds it difficult to use words to communicate his needs and in fact, difficult to form words in a decipherable way. This doesn’t mean he doesn’t try. He tries to copy things we say to him, repeats phrases he sees on tv and attempts to tell us which dinosaur or shark is eating who!
There are times when we are able to make out the words he is using. This can be because he uses them in context and also gestures to what he is talking about. Other times we can tell because the rhythm of what he is saying matches a familiar or common phrase. Sometimes he slows it down and we can make out part of the words he is trying to use. It’s an amazing thing to watch. Something many of us take for granted, it’s as natural to us as breathing. For my J it’s so much more difficult. His brain doesn’t seem to process speech properly. The words can get muddled, or the letters within words. An example would be when he tries to say phone – what we hear is oanf. The sounds are all there, they’re just not in the correct order.
The other night I cried with happiness when he asked me for a cuddle and once I gave him this, he turned his head towards me and asked for a kiss. The words were approximations and most people might not have known what he was asking them to do. He said Give Jude a cuddle please – or ‘ig Jude a guggle peese’ followed by ‘ig Jude a iss peese’. Such simple but such wonderful words. He had a huge smile on his face when I understood and did what he asked. B asks for kisses and cuddles all the time, W even toddles over with her lips pursed making smacking noises to get a kiss. These are also wonderful things, but my J had to work so hard to learn to ask me for these. My heart melts that he loves me enough to try so hard to say this to me and that he actually wants me to kiss and cuddle him – not something all children with autism are able to do.
If I’m honest, J being non-verbal is one of my biggest worries for him as he grows up. It’s one of our biggest frustrations at times too. None of the speech therapists who have worked with him have been able to offer us guidance or advice on how to help him with this. I think they don’t really know themselves. They say just to be patient and wait until he’s ready. My issue with this is that I think he is ready, he just can’t process or assemble the sounds/words properly. To me it seems like a processing issue rather than a lack of understanding or willingness. Does anyone have any other good ideas or solutions to help him with this? Is there anything we can do?
He uses PECS symbols to aid communication but he definitely wants to talk. It’s more apparent when his brother or sister do and I can see he wants to join in. I’m really pleased that he’s trying so hard and he wants to do it. I just wish there was something I could do to make the path a little easier for him!